JUNE 7-8, 2024

Los Angeles, California

Living Rare, Living Stronger® is Headed to the West Coast!

The 2024 NORD® Living Rare, Living Stronger® Patient and Family Forum will be held in Los Angeles, CA at the Hilton Universal City on June 8. After six years, we are excited to bring this program to the west coast! This event will bring together the incredible rare disease community for a day filled with learning, networking, and relationship building. The Living Rare Forum is an opportunity for people living with rare diseases and their families to come together, often for the first time, to gain practical knowledge on how to manage their health and live their best rare lives.

Program topics often include sessions about how to advocate for yourself in the healthcare system, how to coordinate your medical care team, and how get involved in rare disease research and advocacy. Sign up below to be the first to learn more about this exciting event, including information on Travel & Lodging assistance, registration and the agenda coming soon! This is a program you don’t want to miss!

Key Dates

  • November 15, 2023 – Speaker Application Opens
  • December 8, 2023 – Speaker Application Deadline
  • January 9, 2024 – Travel & Lodging Assistance Application Opens
  • February 6, 2024 – Travel & Lodging Assistance Application Closes
  • March 14, 2024 – Registration Opens
  • April 30, 2024 – Early Bird Registration Deadline*
    • *Register by this date to guarantee a conference t-shirt and bag
  • May 3, 2024 – Hotel Reservation Deadline
  • June 24, 2024 –On-Demand Content made available online

* subject to change

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Thank you to our 2023 Sponsors





Supporters & Exhibitors

Media Partners

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: [email protected]

2023 Recap & On-Demand Content

We would like to express our gratitude to everyone who joined NORD for the Living Rare, Living Stronger Patient and Family Forum on May 6, 2023, in Washington, DC. The event, hosted at the Renaissance Downtown Hotel, brought together the incredible rare disease community in our nation’s capital. It was a day filled with learning, networking, and unforgettable moments. We are truly thankful for the opportunity to hear real stories from our community and to share practical knowledge that can help individuals live their best lives while navigating their rare disease journeys. Your presence and active participation made the event a tremendous success. Thank you for joining us and being a part of this remarkable gathering.