
Hosted at the Renaissance Downtown Hotel, we will bring the rare disease community together in our nation’s capital for a day of learning, networking and fun! Hear real stories from our community and gain practical knowledge to help you live your best life while navigating your rare disease journey.
Attendees gathered in person in Cleveland, Ohio for the day to engage with others and hear us discuss topics such as Building and Quarterbacking your Care Team and Transitioning from Childhood to Adulthood with a Rare Disease. A full day of programming was followed by our annual Rare Impact Awards Show at the Rock & Roll Hall of Fame!