May 6, 2023 | Washington, DC

The Rare Impact Awards will be held on May 4, 2023

Join NORD for the Living Rare, Living Stronger Patient and Family Forum on May 6, 2023 in Washington, DC

Hosted at the Renaissance Downtown Hotel, we will bring the rare disease community together in our nation’s capital for a day of learning, networking and fun! Hear real stories from our community and gain practical knowledge to help you live your best life while navigating your rare disease journey.

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2023 Sponsors





Supporters & Exhibitors

Media Partners

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at am[email protected]
Media Inquiries: [email protected]

2022 marked the first time we were back in person since 2019

Attendees gathered in person in Cleveland, Ohio for the day to engage with others and hear us discuss topics such as Building and Quarterbacking your Care Team and Transitioning from Childhood to Adulthood with a Rare Disease. A full day of programming was followed by our annual Rare Impact Awards Show at the Rock & Roll Hall of Fame!