Closing Plenary: Rare Breakthroughs Now and on the Horizon

Post by sroberts in on April 15, 2021

New innovations are helping to improve the diagnosis, treatment and care of rare disease patients. This session will highlight available technologies that benefit rare disease patients and their families, tools currently in development and possible advances we may be seeing in the future.

Plenary: The Rare Sibling Experience

Post by sroberts in on April 15, 2021

Growing up the sibling of a rare disease patient presents unique challenges, but also opportunities. Join this engaging session where three rare disease siblings will share their experiences, including the joys and obstacles encountered on their families’ journeys and how their love for their sibling has led them to advocacy.