Health Equity for the Whole Rare Disease Community

Health equity is the state in which everyone has a fair and just opportunity to attain their highest level of health. In the rare disease community, inequities exist in the long odyssey to diagnosis and the difficulties in accessing treatments that many patients and families face. However, there is so much more at play in the fight for health equity for the estimated 30 million Americans living with rare diseases in America – depending on where they were born, where they live, their level of education, what their first language is, the color of their skin, etc. Join us to discuss some of the known challenges populations within the rare disease community experience and the role that we all play in advancing health equity.