Health and Safety

Ensuring Safety

Ensuring Safety at the Living Rare, Living Stronger NORD Patient and Family Forum

We are pleased to announce that June 26, is confirmed as the date for the 2022 Living Rare, Living Stronger NORD Patient and Family Forum. We appreciate your patience as we continue to follow the evolving nature of the COVID-19 pandemic to determine the exact format for the event.

Our community’s safety and well-being are always our first priority. It is our hope that the 2022 Living Rare Forum will be an in-person program. We miss sharing space with you and all the amazing members of our community! If you have any questions, please contact [email protected].