Information & FAQs

Below is some helpful information that will guide you through attending the event.

General Event FAQs

Click here to download the FAQs

Ensuring Safety at the Living Rare, Living Stronger NORD Patient and Family Forum

Attendees should be aware that while the Living Rare Forum and Rare Impact Awards are taking place, and NORD will make every effort to reduce the risk of COVID-19 transmission, it is possible that attendees will come in contact with people in airports, on public transportation, and in other public areas with individuals who could potentially carry the virus.  NORD strongly encourages those who are able to be fully vaccinated for their own safety, as well as the safety of o­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­­thers ahead of attending the event.

At this time, ALL attendees of the Living Rare Forum must show their COVID-19 vaccination card at the registration table or show proof of a negative PCR or antigen (rapid) COVID-19 test within 48 hours of picking up their registration badge at the conference venue. If you cannot or choose not to comply with NORD’s health and safety protocols, we hope to provide you with other ways to enjoy the program at a later date.

In addition, it is mandatory for ALL persons within the meeting and event spaces to wear a face mask always covering BOTH their nose and mouth while they are indoors. This includes attendees and all accompanying persons above the age of two (2).

Click here to download the Health and Safety Guidelines for the Living Rare Forum

Social Media Toolkit

Click here to download the social media toolkit to get involved!

Code of Conduct and Media Guidelines

Click here to download the Code of Conduct for the 2023 Living Rare Forum and Rare Impact Awards
Click here to download the Media Guidelines for the 2023 Living Rare Forum and Rare Impact Awards

Legal Disclosures
Legal Disclosures