Hotel & Pricing

Book your stay today for both the Living Rare Forum and the Rare Impact Awards!

The Living Rare Forum will be held at: 

The Renaissance Washington DC Downtown Hotel
999 9th Street NW
Washington DC, 20001 

The group rate is no longer available. Please contact the hotel directly for reservations.

Please contact the hotel directly with any ADA needs or special accommodation requests. 

NORD makes every effort to keep attendee expenses as low as possible for the forum, registration, and hotel stays. We have negotiated the best hotel rates with the Renaissance.  And we encourage all participants to register for the forum and book your hotel within our negotiated room block.

Please note, anyone attending on travel and lodging assistance must book with the hotel room block.

The hotel offers onsite parking for $35 per day with in/out privilege’s or valet parking is available for $60.18. Taxes and fees apply. Height clearance is 6ft 4in.

NORD does not work with any third-party booking company. To guarantee your reservation, please book via the link above or by calling the hotel reservations line directly at 1-800-468-3571.

EVENT PRICINGEarly Bird Pricing
(By 3/24/2023)
Standard Rate
(By 5/6/23)
Patient / Caregiver/ Representative of NORD Patient Organization Member/Student / Children under 18 No FeeNo Fee
Professional Advocate/Academic/Physician/Government  $100$125
NORD Corporate Council Member $1,300$1,500
Industry (Pharma, Service Provider, Co-Pay Foundation) $1,500$1,700


Substitution and Cancellation  

For paid registrations, any cancellations received in writing on or before 14 days prior to the start date of the event will be refunded. Any cancellations received in writing between April 15-30, 2023 will be refunded 50% of the registration cost (maximum retained for an administrative charge will be $250) No refunds will be made after April 30, 2023. Your registration may be transferred to another member of your family or organization up to 24 hours in advance of the forum.

In case of a conference cancellation beyond our control*, you will receive a refund for your conference registration fee only. NORD reserves the right to alter this program without prior notice.

PLEASE NOTE: Speakers and agenda are subject to change.  In the event of a speaker cancellation, every effort to find a suitable replacement will be made.

*Events beyond our control include severe weather conditions, natural and man-made disasters, and any other similar events.

General Information

For additional pricing information, please contact [email protected].

Registration fee includes Saturday continental breakfast and lunch during the conference.  Dinner on Thursday during the Rare Impact Awards is included should you register for that program.  Credit Card (Visa, MasterCard, AMEX, Discover) are accepted.

PLEASE NOTE: All advertised discounts are taken from the full, standard rate.