2022 Rare Impact Awards®

NORD will present the Rare Impact Awards on Sunday June 26, 2022, at the historic Rock and Roll Hall of Fame in downtown Cleveland.

For the first time since 2019, we look forward to an in-person celebration of the individuals and organizations making extraordinary strides on behalf of the millions of Americans impacted by rare disease. The Rare Impact Awards is truly a celebration, and one for the entire rare community. Check out the full list of 2022 honorees!

Registration is now open for the Rare Impact Awards, and for the Living Rare Forum, both taking place on June 26.

 A virtual option is now available for those who are unable to join us in-person. Click here register for virtual access.

For sponsorship inquiries contact [email protected].

Emcee Announced – Art Alexakis

Our incredible emcee Art Alexakis, singer-songwriter and guitarist of the band Everclear, will host our in-person award ceremony at the Rock & Roll Hall of Fame.

2022 Rare Impact Award Honorees

Marshall Summar, MD

Lifetime Achievement Award

Sickle Cell Disease Association of America, Inc

Abbey S Meyers Leadership Award

Peter Hotez, MD, PhD

Public Health Leadership Award

Maria Elena Bottazzi, PhD

Public Health Leadership Award

Congressman G. K. Butterfield (D) North Carolina

Rare Impact Award

Delegate Kathleen Murphy (D) Virginia 34th District

Rare Impact Award

Lesley Bennett

Rare Impact Award

Bo Bigelow

Rare Impact Award

Melinda Burnworth, PharmD, BCPS

Rare Impact Award

Richard Horgan

Rare Impact Award

Tammy Jones

Rare Impact Award

Jack Timperley

Rare Impact Award

Kids Caring for Kids Youth Advisory Board

Rare Impact Award

Michail Lionakis, MD ScD

Rare Impact Award

Nora Wong, PhD

Rare Impact Award


Industry Innovation Award

BridgeBio Pharma for Nulibry™

Kedrion Biopharma for Ryplazim®

PharmaEssentia Corporation for Besremi®

Enzyvant for Rethymic®

Bristol Myers Squibb & 2seventy bio for Abecma®

On Target Laboratories Inc. for Cytalux™

Apellis for Empaveli™

Highlights from the 2021 Rare Impact Awards®

Watch the complete 2021 program ON demand

Download the Rare Impact Awards Program Books

RIA 2020 cover