NORD will present the Rare Impact Awards on Sunday June 27, 2022. We look forward to celebrating the individuals, groups and companies making extraordinary strides on behalf of the millions of Americans impacted by rare disease. Please check back often for updates on this year’s program.
For sponsorship inquiries contact [email protected]
Watch the complete 2021 program ON demand
Download the 2021 Rare Impact Awards Program Book
MD, PhD
Director, CBER, FDA
Public Health Leadership Award
Desmoid Tumor Research Foundation
Abbey S Meyers Leadership Award
MD
Chief Executive Officer, Partner, Flagship Pioneering
Special Recognition
Vice President, A Twist of Fate- Arterial Tortuosity Syndrome
Rare Impact Award
Founder, Daniela’s Little Wish, Advocate
Rare Impact Award
RN
Co-Director, Office of Community Engagement and Diversity, Baylor College of Medicine
Rare Impact Award
Executive Director, Uplifting Athletes
Rare Impact Award
PhD, MBA
Senior Director, In Vivo Pharmacolgy; Rare and Orphan Disease Center
Rare Impact Award
Industrial Designer, Writer, Illustrator and Advocate
Rare Impact Award
MD
Medical Geneticist, Rare Disease Institute. Associate Professor, George Washington University
Rare Impact Award
MD FACS
Professor of Surgery | UC San Diego School of Medicine, Executive Vice Chair of Research | Department of Surgery; Co-Leader, Sarcoma Disease Team | Moores Cancer Center
Rare Impact Award
United States Senator, Washington
Rare Impact Award
State Representative From Massachusetts
Rare Impact Award
New York Rare Action Network Volunteer Ambassador
Rare Impact Award
Wisconsin Rare Action Network Volunteer Ambassador
Rare Impact Award
for OXLUMO™
for Koselugo™
for AYVAKIT™
for Zokinvy™
for TEPEZZA®
for PEMAZYRE®
for Retevmo®
for INMAZEB™
for Ebanga™