Garcia, Rigo MPH

Speaker Information
First Name
Last Name
Preferred Pronouns
  [email protected]
  (626) 765-6656
  Hemophilia Foundation of Southern California
Job Title
  Executive Director
As we develop programs and resources to empower our diverse community, we ask participants to select the response that best reflects their race and or ethnicity:
  Hispanic, Latino/a, Latine, Latinx
What rare disease(s) do you represent?
  Bleeding Disorders
How many years have you been involved with rare diseases?
  1-5 years
Name and contact details for the best person for coordinating logistics if other than yourself:

Name Email
Rigo Garcia [email protected]

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Travel Distance from Los Angeles, CA:
  5 miles
Presentation Information
Proposed Presentation Title
  Health Equity Efforts for People with a Rare Disease
Presentation Summary
  Discussion on how you can ensure health equity efforts are being done within your rare disease.

What does health equity mean to me?

Health Equity is ensuring equitable access to quality and affordable health care and other social services (e.g., education, housing, transportation, child care) and accessibility within these services. We will focus on social drivers of health, policy and advocacy change, engaging in programming and support from your healthcare systems (including healthcare team and community based organizations).

NOTE: I can also make changes to meet your goals.

Have you spoken previously for NORD?

  • Yes

If Yes, at which event (Name and Date)
  NORD National Conference
Have you previously spoken at any rare disease events or are you planning to speak at any upcoming events within the next year?

  • Yes

If yes, please list the name and dates of your speaking engagements .
  NORD Webinar
Please provide up to 3 examples of previous presentation experience, include links to videos if applicable.
  Presentaiton on equity diversity and inclusion in healthcare

Creating programming for underserved populations

Increasing minority populations in research

Target Audience:
  The target audience would be anyone affected directly or indirectly by a rare disease.
Learning Outcomes:
  How to advocate for health equity
How social drivers of health affect overall health
HOw to work with your local organizations
  As a potential speaker for the Living Rare Living Stronger Patient and Family Forum I agree: