Post by
sroberts in
on
December 8, 2023
| Speaker Information |
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First Name
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Rigo
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Last Name
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Garcia
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Preferred Pronouns
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He/him
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Email
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[email protected]
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Phone
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(626) 765-6656
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Organization
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Hemophilia Foundation of Southern California
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Job Title
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Executive Director
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Credentials
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MPG
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As we develop programs and resources to empower our diverse community, we ask participants to select the response that best reflects their race and or ethnicity:
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Hispanic, Latino/a, Latine, Latinx
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What rare disease(s) do you represent?
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Bleeding Disorders
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How many years have you been involved with rare diseases?
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1-5 years
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Name and contact details for the best person for coordinating logistics if other than yourself:
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Upload or submit your biography
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Please upload your headshot
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Travel Distance from Los Angeles, CA:
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5 miles
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| Presentation Information |
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Proposed Presentation Title
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Health Equity Efforts for People with a Rare Disease
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Presentation Summary
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Discussion on how you can ensure health equity efforts are being done within your rare disease.
What does health equity mean to me?
Health Equity is ensuring equitable access to quality and affordable health care and other social services (e.g., education, housing, transportation, child care) and accessibility within these services. We will focus on social drivers of health, policy and advocacy change, engaging in programming and support from your healthcare systems (including healthcare team and community based organizations).
***
NOTE: I can also make changes to meet your goals.
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Have you spoken previously for NORD?
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If Yes, at which event (Name and Date)
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NORD National Conference
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Have you previously spoken at any rare disease events or are you planning to speak at any upcoming events within the next year?
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If yes, please list the name and dates of your speaking engagements .
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NORD Webinar
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Please provide up to 3 examples of previous presentation experience, include links to videos if applicable.
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Presentaiton on equity diversity and inclusion in healthcare
Creating programming for underserved populations
Increasing minority populations in research
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Target Audience:
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The target audience would be anyone affected directly or indirectly by a rare disease.
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Learning Outcomes:
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How to advocate for health equity
How social drivers of health affect overall health
HOw to work with your local organizations
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Consent
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 As a potential speaker for the Living Rare Living Stronger Patient and Family Forum I agree:
– To participate in a panel prep meeting with all speakers in the session between 3 and 4 weeks prior to the conference. (60-minute time blocks will be arranged via calendar invite).
– To use the NORD branded slide deck for any presentation decks that need to be created.
– To register in advance for the conference no later than April 30th. (A complimentary registration code will be provided).
– To respond within 72 business hours to all emails.
– To notify NORD as soon as possible if my participation in the conference becomes no longer possible so that an appropriate replacement can be identified.
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