Post by
sroberts in
on
December 7, 2023
| Speaker Information |
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First Name
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Andre
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Last Name
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Harris
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Preferred Pronouns
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he/him
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Email
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[email protected]
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Phone
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(910) 476-7068
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Organization
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Sickle Cell Association of Houston
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Job Title
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Board Member/Legislative Director
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Credentials
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MSW
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As we develop programs and resources to empower our diverse community, we ask participants to select the response that best reflects their race and or ethnicity:
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Black or African American
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What rare disease(s) do you represent?
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Sickle Cell
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How many years have you been involved with rare diseases?
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10+ years
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Upload or submit your biography
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Please upload your headshot
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Travel Distance from Los Angeles, CA:
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1550 Miles
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| Presentation Information |
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Proposed Presentation Title
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Advancing Sexual and Reproductive Health Justice within the Rare Disease Community
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Presentation Summary
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This presentation is an examination of the unique obstacles and disadvantages that people living with rare diseases face when it comes to sexual and reproductive health. It provides participants with the ammunition to tackle these challenges, as well as useful insights into effective advocacy techniques inside the healthcare system and in policy. Furthermore, attendees will learn about possibilities to participate in rare illness research and advocacy activities focusing on sexual and reproductive health justice, ultimately creating connections and relationships within the rare disease community to address these vital challenges collectively. This presentation offers to provide its audience with knowledge and specific strategies to ensure equitable access to sexual and reproductive healthcare for all persons, regardless of rare disease status.
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Have you spoken previously for NORD?
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Have you previously spoken at any rare disease events or are you planning to speak at any upcoming events within the next year?
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Please provide up to 3 examples of previous presentation experience, include links to videos if applicable.
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Sickle Cell 101 for Social Workers; National Association of Social Workers Texas State Conference
Breaking the Sickle Cycle: Advancing Sickle Cell Disease Research and Policy Change -through Social Work Perspectives; Society for Social Work Research Conference
Examining Ryan White HIV/AIDS Program with Critical Race Theory; US Conference on HIV/AIDS
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Target Audience:
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All attendees are welcome. Sexual and Reproductive Health impacts everyone.
18 years of age and older may be a good threshold, however, no explicit information will be shared.
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Learning Outcomes:
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Understand the specific challenges and disparities in sexual and reproductive health faced by individuals living with rare diseases.
Learn effective strategies for advocating for comprehensive sexual and reproductive healthcare within the healthcare system.
Discover opportunities to engage in rare disease research and advocacy related to sexual and reproductive health justice.
Foster connections and relationships within the rare disease community on sexual and reproductive health
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Consent
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 As a potential speaker for the Living Rare Living Stronger Patient and Family Forum I agree:
– To participate in a panel prep meeting with all speakers in the session between 3 and 4 weeks prior to the conference. (60-minute time blocks will be arranged via calendar invite).
– To use the NORD branded slide deck for any presentation decks that need to be created.
– To register in advance for the conference no later than April 30th. (A complimentary registration code will be provided).
– To respond within 72 business hours to all emails.
– To notify NORD as soon as possible if my participation in the conference becomes no longer possible so that an appropriate replacement can be identified.
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