Rare Impact Awards® 2023

To celebrate NORD’s 40th anniversary, the 2023 Rare Impact Awards will be hosted in our nation’s capital, the place where rare disease patients and families testified in front of Congress to pass the Orphan Drug Act in 1983. This very special event will honor those individuals and organizations doing remarkable work on behalf of the rare disease community. The awards ceremony will take place in the historic National Portrait Gallery on May 4, 2023.

The Submission window is  now closed. Visit this page often for updates on this years selected nominees. 

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Legal Disclosures

2022 RARE IMPACT AWARD HONOREES


Marshall Summar, MD

Lifetime Achievement Award


Sickle Cell Disease Association of America, Inc

Abbey S Meyers Leadership Award


Peter Hotez, MD, PhD

Public Health Leadership Award


Maria Elena Bottazzi, PhD

Public Health Leadership Award


Congressman G. K. Butterfield (D) North Carolina

Rare Impact Award


Delegate Kathleen Murphy (D) Virginia 34th District

Rare Impact Award


Lesley Bennett

Rare Impact Award


Bo Bigelow

Rare Impact Award


Melinda Burnworth, PharmD, BCPS

Rare Impact Award


Richard Horgan

Rare Impact Award


Tammy Jones

Rare Impact Award


Jack Timperley

Rare Impact Award


Kids Caring for Kids Youth Advisory Board

Rare Impact Award


Michail Lionakis, MD ScD

Rare Impact Award


Nora Wong, PhD

Rare Impact Award

2022 INDUSTRY INNOVATION AWARD HONOREES

Industry Innovation Award

BridgeBio Pharma for Nulibry™

Kedrion Biopharma for Ryplazim®

PharmaEssentia Corporation for Besremi®

Enzyvant for Rethymic®

Bristol Myers Squibb & 2seventy bio for Abecma®

On Target Laboratories Inc. for Cytalux™

Apellis for Empaveli™