Living Rare, Living Stronger is coming to THREE cities in 2026!

We can’t wait to connect and learn with rare disease communities across the country. More details coming soon!

Make Connections, Build Community

The National Organization for Rare Disorders (NORD®) is proud to convene people living with a rare disease and their families through the Living Rare, Living Stronger® forum.

In 2025, we offered two day-long forums that featured conversations and education designed to help you navigate life with a rare disease or as a rare caregiver. With powerful keynote speakers, dynamic educational sessions, and meaningful opportunities to connect, each forum delivered moments of inspiration and belonging that will be cherished forever. If you missed the forums, we hope to see you in 2026! You can catch up on the highlights from Georgia and Wisconsin in our blog posts.

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Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: [email protected]