Virtual Registration

Step 1 of 2

Your Information

Registration Type(Required)

Discount Code

Name(Required)

First Last

Email(Required)

Phone(Required)

Disease / Disorder of Interest(Required)

I am interested in sharing my rare story and wish to be connected with a member of the NORD staff.

Yes

Possibly in the future, but not now.

How did you hear about the event? (Required)

Please list the rare disease organization

NORD Staff Name(Required)

If other, please specify(Required)

Please share your pronouns. We want to know to respectfully refer to you. (Required)

If not listed(Required)

As we develop programs and resources to empower our diverse community, we ask participants to select the response that best reflects their race and or ethnicity:(Required)

If not listed(Required)

What is your primary reason for participating in this conference?(Required)

Other expectation(Required)

What are you hoping to gain from participating in this conference?(Required)

Please share which best describes you:(Required)

Please select any/all statements that are true for you: (Required)

There is a patient organization for my rare disease, and I am connected to them.

There is no patient organization for my rare disease, or I haven’t found them yet.

This is my first time connecting with the rare disease community

I’ve been connected within the rare disease community for years, but I still find value in attending conferences like these.

Additional Questions for Advocates, Government, Industry, Medical Professionals, Students

Company or School(Required)

Title(Required)

Job Function (Required)

How long have you been working in rare diseases? (Required)

Job Level(Required)

Payment Information

Billing Address(Required)

Street Address Address Line 2 City State ZIP Code

Total

Credit Card

Card Details

Cardholder Name

Substitution and Cancellation

For paid registrations, any cancellations received in writing on or before 14 days prior to the start date of the event will be refunded. Any cancellations received in writing between April 15-30, 2023 will be refunded 50% of the registration cost (maximum retained for an administrative charge will be $250) No refunds will be made after April 30, 2023. Your registration may be transferred to another member of your family or organization up to 24 hours in advance of the forum.

In case of a conference cancellation beyond our control*, you will receive a refund for your conference registration fee only. NORD reserves the right to alter this program without prior notice.

PLEASE NOTE: Speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made.

*Events beyond our control include severe weather conditions, natural and man-made disasters, and any other similar events.

General Information

For additional pricing information, please contact [email protected]

Registration fee includes Saturday continental breakfast and lunch during the conference. Dinner on Thursday during the Rare Impact Awards is included should you register for that program.

Credit Card (Visa, MasterCard, AMEX, Discover) are accepted.

PLEASE NOTE: All advertised discounts are taken from the full, standard rate.