Medical Director, Genetics Center; Co-Program Director, Neurofibromatosis and RASopathy; Professor and Section Chief, Pediatrics (Genetics)
Medical College of Wisconsin/Children’s Wisconsin
Associate Professor, Pediatric Hospital Medicine
Medical College of Wisconsin/Children’s Wisconsin
Chief Executive Officer
NORD
Senior Community Engagement Manager
NORD
Advocate; Patient; Wisconsin Ambassador
NORD Rare Action Network
Patient; Legislative Advocate; Community Board Member
Medical College of Wisconsin
Rare Patient Living with Myasthenia Gravis, Advocate, MG Wisconsin Support Group Leader
Member MG Holistic Society
Assistant Professor and Genetic Counselor, Department of Pediatrics, Division of Genetics and Metabolism
University of Wisconsin
Nurse; Program Manager, Genetics Clinic
Children’s Wisconsin
Retired, Veteran, Professional Trial Patient, Rare Disease Advocate
Genetic Counselor
The Waisman Center & UW Health Ophthalmology
Rare Mom and Caregiver; Legislative Advocacy Team; Board Member
Cure CMD, Wisconsin Rare Disease Alliance
Professor, Medical Genetics and Genomics Residency Director; Co-Director
University of Wisconsin, UW NORD Center of Excellence for Rare Diseases
Rare Mom; Special Education Patient Advocate; Program Manager, Digital Health & Experience
Children’s Wisconsin
Associate Professor, Clinical Genetics and Genomics, Pediatrics
Medical College of Wisconsin/Children’s Wisconsin
Community Engagement Associate
NORD
Education Programs Manager
NORD and Rare Mama
Rare mom and Caregiver;
Chair of the Foundation Board of Children’s Wisconsin
Lifelong Learner and Educator