Assistant Professor, Pediatric Epilepsy
University of Colorado
Patient Advocate; Student, University of Colorado Denver
Recipient of the 2026 Community Champion NORD Rare Impact Award
Chief Genomics Officer
Precision Medicine Institute, Children's Hospital Colorado
Chief Executive Officer
NORD
Rare Caregiver, Head Men's Soccer Coach
Metropolitan State University of Denver (MSU)
Associate Professor of Pediatrics, Section of Hematology, Oncology & Bone Marrow Transplantation
Vice President of Community & Medical Affairs
NORD
Senior Global Medical Safety Clinician
Terumo Blood and Cell Technologies (Terumo BCT)
Professor of Neurology and Pharmacy
University of Colorado Anschutz Medical Campus
Community Engagement Manager
NORD and Rare Mama