CEO/Founder
National Center for Pediatric Palliative Care Homes, Rare Caregiver
Vice President of Community & Medical Affairs
NORD
Faculty Associate; Arizona Rare Disease Advisory Council Member
Arizona State University, Edson College
Medical Director
Translational Genomics Research Institute Center for Rare Childhood Disorders
Department of Clinic Genomics
Mayo Clinic
Patient Advocate, Rare Caregiver
Assistant Professor, Department of Cell and Molecular Medicine
University of Arizona College of Medicine
Phoenix Children’s Hospital
Rare Caregiver
Fly Little Bird Foundation