Speakers

Jonathan Cottor

CEO/Founder

National Center for Pediatric Palliative Care Homes, Rare Caregiver

Marybeth McAfee

Vice President of Community & Medical Affairs

NORD

Vinodh Narayanan, MD

Child Neurologist

Arizona Pediatric Neurology & Neurogenetics Associates (APNNA)

Stephanie Rankin

Patient Advocate; Rare Caregiver; Customer Advocate Team Lead

DNM1

Taejeong (TJ) Song, PhD

Assistant Professor, Department of Cell and Molecular Medicine

University of Arizona College of Medicine

Melissa Meyer, DNP, PMHNP-BC

Doctor of Nursing Practice, Psychiatric Mental Health Nurse Practitioner

Arizona State University; Grossman & Grossman; Stiff Person Syndrome

Keri Ramsey, MS, CGC, RN

Department of Clinic Genomics

Mayo Clinic

Taylor Vaughn, MS, CGC

Phoenix Children’s Hospital

Tabby Wallace

Rare Caregiver

Fly Little Bird Foundation