Speakers

Jonathan Cottor

CEO/Founder

National Center for Pediatric Palliative Care Homes, Rare Caregiver

Marybeth McAfee

Vice President of Community & Medical Affairs

NORD

Melissa Meyer, DNP, PMHNP-BC

Doctor of Nursing Practice, Psychiatric Mental Health Nurse Practitioner

Arizona State University; Grossman & Grossman; Stiff Person Syndrome

Vinodh Narayanan, MD

Child Neurologist

Arizona Pediatric Neurology & Neurogenetics Associates (APNNA)

Keri Ramsey, MS, CGC, RN

Department of Clinic Genomics

Mayo Clinic

Stephanie Rankin

Patient Advocate; Rare Caregiver; Customer Advocate Team Lead

DNM1

Taejeong (TJ) Song, PhD

Assistant Professor, Department of Cell and Molecular Medicine

University of Arizona College of Medicine

Taylor Vaughn, MS, CGC

Phoenix Children’s Hospital

Tabby Wallace

Rare Caregiver

Fly Little Bird Foundation