Overview & FAQs

General Details

• Date: June 27, 2025
• Location: Georgia Aquarium, 357 Luckie Street NW, Atlanta, GA 30313
• Time: Breakfast begins at 8 a.m. with programming to start at 9 a.m.

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This event will:

• Showcase NORD’s programs and services for the rare disease community and welcome attendees to become involved in NORD’s work.
• Help alleviate feelings of isolation by connecting caregivers and those living with rare diseases to each other.
• Introduce attendees to local advocates and present opportunities to engage in state/federal grassroots advocacy efforts.
• Highlight community-based organizations that have resources for people living with rare diseases.
• Learn how designated NORD® Rare Disease Centers of Excellence are advancing rare disease care and research.