Jorden Albright

Advocate, Patient, Brother; Director

Rise Property Group

Leah Barber

Director of Grassroots Advocacy

NORD

Mason Barrett

Policy Analyst

NORD

Jill C. Flanagan, MD, FAAOS

Pediatric Orthopedic and Limb Reconstruction Surgeon, Co Medical Director – Limb Difference Program, Children’s Physician Group – Orthopedics and Sports Medicine

Children’s Healthcare of Atlanta

Pamela Gavin

Chief Executive Officer

NORD

Kimberly Gonzalez

Patient, Advocate

Nakisha Isom

Patient, Mother, Advocate, Author activist, President

Living with Holt Oram Syndrome

Stephanie Keller

Pediatric Neurology

Children's Healthcare of Atlanta

Alpa Khushalani

Duchenne Mom, PPMD Connect Coordinator

Gooseberry Research - VP Customer Success & Delivery

Michael Kraft, MD FAAFP, CAQSM, DipABLM

Associate Chief Health Information Officer, Medical Director Virtual Care, Assistant Professor Family and Preventative Medicine

Emory SOM

Dawn Laney, MS, CGC, CCRC

Associate Professor/Genetic Counselor, Director of the Emory Genetic Clinical Trial Center

LSDC Program Leader

Alison Leeds

Connecticut Ambassador

NORD Rare Action Network®

Hong Li

Department of Genetics and Pediatrics

Emory University School of Medicine

Montrez Lucas

Director of Patient Engagement

NephCure

Kimberly A. Moran, PhD, MBA, CDP

Head, US Rare Diseases

UCB, Inc.

Tamekia and Carl Parence

Patient Advocate, Caregiver, Mother

Tiffany Sammons

Education Programs Manager

NORD and Rare Mama

Rossana Sanchez

Department of Genetics

Emory University School of Medicine

Amanda Singleton

Director, Patient Advocacy and Biopharma

GeneDx