The National Organization for Rare Disorders (NORD®) is proud to convene people living with a rare disease and their families through the Living Rare, Living Stronger® forum.
NORD is coming to three states in 2026 — a new record! — and we are also hosting a national virtual event. With powerful keynote speakers, dynamic educational sessions, and meaningful opportunities to connect, each forum is designed to help you navigate life with a rare disease or as a rare caregiver.
Thank you to everyone who joined us this spring in Phoenix and Denver! Our next and final Living Rare, Living Stronger events in 2026 will be our national virtual event this September and our in-person event in Florida this November. The details for both of these events are coming soon. No matter where in the U.S. you live, we invite you to join us this year.