Living Rare
Living Stronger

NORD® Patient and Family Forum
JUNE 26-27th

2021 Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards

The health and well-being of people living with rare diseases, their loved ones and those working to improve their lives continues to remain a top priority for all of us here at NORD. The COVID-19 pandemic brought us new ways to engage with our community and our 2020 virtual program was the most successful forum to date!

In 2021 we will continue to work hard to keep our community healthy and safe while engaging in this impactful program. Check back regularly as we will update the website often with new developments.

Event Overview

The Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards will be a truly patient-centric event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun! In 2021, the Rare Impact Awards will return as part of the program and all attendees and their guests are invited to participate.

2021 Rare Impact Awards®

June 28, 2021 @ 7pm EST
For the second year in a row, NORD will present the Rare Impact Awards as an online streaming event, premiering on June 28, 2021. We look forward to celebrating the individuals, groups and companies making extraordinary strides on behalf of the millions of Americans impacted by rare disease. Please check back often for updates on this year’s program.

For sponsorship inquiries contact [email protected]

Rare Impact Awards® Gallery

Learn More

Show your support

Social Media Toolkit
The toolkit includes helpful tips for using social media, customizable template posts, links to official social media properties including profile handles, hashtags and digital assets. Thank you for contributing to the success of the forum. Happy sharing!

Download the Toolkit

Thank you to our 2021 partners!

Click here to see all of our 2021 partners



Stay tuned for 2022!

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: Lesli Nordstrom at [email protected]