JUNE 7-8, 2024

Los Angeles, California

Thank you for joining us!

We would like to express our gratitude to everyone who joined NORD for the Living Rare, Living Stronger Patient and Family Forum on May 6, 2023, in Washington, DC. The event, hosted at the Renaissance Downtown Hotel, brought together the incredible rare disease community in our nation’s capital. It was a day filled with learning, networking, and unforgettable moments. We are truly thankful for the opportunity to hear real stories from our community and to share practical knowledge that can help individuals live their best lives while navigating their rare disease journeys. Your presence and active participation made the event a tremendous success. Thank you for joining us and being a part of this remarkable gathering.

Discover the Joy of Laughter with Laughing Lovebugs Yoga

We are thrilled to have Laughing Lovebugs leading a Laughter Yoga session at the Living Rare Forum! Alik and Lauren Colbert founded Laughing Lovebugs with a mission to cultivate joy and inspire connection in the lives of others through Laughter Yoga. As Certified Laughter Leaders, they lead Laugher Yoga sessions and programs for individuals of all ages, from children to seniors.

They are passionate about empowering, inspiring, and enlightening others, and are dedicated to helping people discover the joys and benefits of Laughter Yoga. They are constantly inspired by the joy that Laughter Yoga brings to their lives and infuse this feeling into every interaction and connection.

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2023 Sponsors





Supporters & Exhibitors

Media Partners

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: [email protected]

2022 marked the first time we were back in person since 2019

Attendees gathered in person in Cleveland, Ohio for the day to engage with others and hear us discuss topics such as Building and Quarterbacking your Care Team and Transitioning from Childhood to Adulthood with a Rare Disease. A full day of programming was followed by our annual Rare Impact Awards Show at the Rock & Roll Hall of Fame!