Coming to you live from Washington DC!
The Living Rare, Living Stronger Patient and Family Forum will be held on May 6, 2023
The Rare Impact Awards will be held on May 4, 2023

2023 Living Rare, Living Stronger Patient and Family Forum is back in person from the Renaissance Downtown Hotel, Washington DC on May 6, 2023.

We will bring the rare disease community together in our nation’s capital for a day of learning, networking and fun! Join others to learn more about living your best life while navigating your rare disease journey.

Check back often for more information on the agenda and registration!

2022 marked the first time we were back in person since 2019

Attendees gathered in person in Cleveland, Ohio for the day to engage with others and hear us discuss topics such as Building and Quarterbacking your Care Team and Transitioning from Childhood to Adulthood with a Rare Disease. A full day of programming was followed by our annual Rare Impact Awards Show at the Rock & Roll Hall of Fame!

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Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: Rohan Narayanan at [email protected]