The National Organization for Rare Disorders (NORD®) is proud to convene people living with a rare disease and their families through the Living Rare, Living Stronger® forum.
NEW this year, we are offering TWO opportunities for you to engage in candid dialogue around difficult topics, acquire tools for self-advocacy, and connect to much-needed local resources.
Whether you plan to join us in Atlanta or Milwaukee, each day-long forum will feature conversations and education designed to help you navigate life with a rare disease or as a rare caregiver. We hope to see you soon!
Thank you for joining us at the 2024 Living Rare, Living Stronger® NORD® Patient and Family Forum in Los Angeles, CA and virtually. It was our first time bringing this beloved community event to the West Coast, and we enjoyed every second of it.
From performances by the all-women wheelchair dance group, the Rollettes, to a keynote speech by filmmaker and epilepsy advocate Miles Levin, and so much more, this was an event that everyone who attended will remember for years to come.
Did you miss this year’s Living Rare Forum? Don’t worry. You can read a detailed recap of all the highlights here. You can also watch every speech and panel discussion for free on YouTube here.
We’re excited to announce that all sessions from this unforgettable event are now available to watch online on-demand. Relive the inspiring presentations including the impactful keynote speech by filmmaker and epilepsy advocate Miles Levin, and explore much more. Whether you attended in person or virtually, you can now experience the highlights and moments from this event anytime, anywhere.
Don’t miss out—watch now and be inspired by the incredible stories and experiences shared at the 2024 Living Rare, Living Stronger® NORD® Patient and Family Forum.
