Get ready to join us in Atlanta on June 27, 2025! Click the Georgia Meeting tab in the navigation menu above to discover key details about our upcoming event and explore the agenda.
The National Organization for Rare Disorders (NORD®) is proud to convene people living with a rare disease and their families through the Living Rare, Living Stronger® forum.
NEW this year, we are offering TWO opportunities for you to engage in candid dialogue around difficult topics, acquire tools for self-advocacy, and connect to much-needed local resources.
Whether you plan to join us in Atlanta or Milwaukee, each day-long forum will feature conversations and education designed to help you navigate life with a rare disease or as a rare caregiver. We hope to see you soon!
Thank you for joining us at the 2024 Living Rare, Living Stronger® NORD® Patient and Family Forum in Los Angeles, CA and virtually. It was our first time bringing this beloved community event to the West Coast, and we enjoyed every second of it.
From performances by the all-women wheelchair dance group, the Rollettes, to a keynote speech by filmmaker and epilepsy advocate Miles Levin, and so much more, this was an event that everyone who attended will remember for years to come.
Did you miss last year’s Living Rare Forum? It’s not too late! Read on to learn more and access on-demand content.