Coming to you live from Washington DC!
The Living Rare, Living Stronger Patient and Family Forum will be held on May 6, 2023
The Rare Impact Awards will be held on May 4, 2023
We will bring the rare disease community together in our nation’s capital for a day of learning, networking and fun! Join others to learn more about living your best life while navigating your rare disease journey.
Check back often for more information on the agenda and registration!
Attendees gathered in person in Cleveland, Ohio for the day to engage with others and hear us discuss topics such as Building and Quarterbacking your Care Team and Transitioning from Childhood to Adulthood with a Rare Disease. A full day of programming was followed by our annual Rare Impact Awards Show at the Rock & Roll Hall of Fame!