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2022 Living Rare, Living Stronger Patient and Family Forum®
Featuring the Rare Impact Awards®

We are hopeful that in 2022 we will be back in person! For the next Living Rare, Living Stronger Patient and Family Forum, NORD is planning on bringing the rare disease community together for a day of thoughtful learning, networking, and celebration at the Rare Impact Awards.

The safety and comfort of attendees are NORD’s number one priority. Check back often for more information and updates from the NORD team as we follow guidance and best practices from the CDC and local health authorities in determining how this year’s event will be presented.

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Rare Impact Awards

The Rare Impact Awards are an annual recognition of those making extraordinary strides on behalf of the millions of Americans impacted by rare diseases. Nominations are OPEN now for the 2022 Rare Impact Awards! Nominate your rare hero and join NORD, as we celebrate the incredible and sustained impact of individuals, groups and breakthrough innovations on the rare disease community.

2021 Recap

Get excited for 2022’s inspirational and informative curriculum by taking a look back! The 2021 Living Rare, Living Stronger was a dynamic, engaging and innovative virtual experience for the whole rare disease community. With over 700 registrants from 47 states and 10 countries, participants explored a wealth of educational, wellness, and networking opportunities, emphasizing diversity and equity, family, and partnership—all with the goal of empowering each other to ‘live your best rare life’. Last year’s content is available NOW for you to explore!

Key Contacts

General Inquiries: [email protected]
Sponsorship Inquiries: Alexa Moore at [email protected]
Media Inquiries: Rohan Narayanan at [email protected]

Thank you to our 2021 sponsors!




Supporters & Exhibitors

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