Speakers

Jonathan Cottor

CEO/Founder

National Center for Pediatric Palliative Care Homes, Rare Caregiver

Marybeth McAfee

Vice President of Community & Medical Affairs

NORD

Melissa Meyer, DNP, RN, PMHNP-BC, MAPC

Faculty Associate; Arizona Rare Disease Advisory Council Member

Arizona State University, Edson College

Vinodh Narayanan, MD

Medical Director

Translational Genomics Research Institute Center for Rare Childhood Disorders

Keri Ramsey, MS, CGC, RN

Department of Clinic Genomics

Mayo Clinic

Stephanie Rankin

Patient Advocate, Rare Caregiver

Taejong Song, PhD

Assistant Professor, Department of Cell and Molecular Medicine

University of Arizona College of Medicine

Taylor Vaughn, CGC

Phoenix Children’s Hospital

Tabby Wallace

Rare Caregiver

Fly Little Bird Foundation