Speakers

Megan Abbott, MD

Assistant Professor, Department of Pediatrics, Section of Neurology

Lily Emmanuel

Rare Community Member

Recipient of the 2026 Community Champion NORD Rare Impact Award

Pamela Gavin

Chief Executive Officer

NORD

Nick Kirchhof

Rare Caregiver, Head Soccer Coach

Metropolitan State University of Denver (MSU)

Margaret Macy

Marybeth McAfee, MA, GC

Vice President of Community & Medical Affairs

NORD

Kavita V Nair, PhD, FAAN

Chair

American Academy of Neurology’s Coding, Payer, and Policy Subcommittee

Tiffany Sammons

Community Engagement Manager

NORD and Rare Mama