Our concluding session will be a message of hope and inspiration for those who cope with a rare disease diagnosis from someone who is doing just that. Jackson Goodrich is a 17-year old who was diagnosed with a genetic kidney condition called Dent disease when he was 5 years old. Join him as he relates with humor, science, and sentiment about how he is coping with his diagnosis and how scientific advancements, such as gene therapy, shine a bright light of hope on the future of all of us in the rare disease community. We might be dented, but we’re not broken!
