Topics:
- Transitioning from Pediatric to Adult Care
- Shared Decision-making with Your Care Team
- Getting Involved in Rare Disease Advocacy
- Rare Relationships and Dating
- Self-care for Rare Caregivers
- Transitions out of the Home to Independent Living and College
- Newly Diagnosed and Finding a New Normal
- Living Undiagnosed
- Rare Despair, Bereavement, and Anticipatory Grief
- Rare Awareness and Connections on Social Media
- Rare Men
- Rare Teens and Young Adults
- The Rare Sibling Experience
- Parents of Newly Diagnosed Rare Pediatric Patients
- Long-term Survivors