Living Rare, Living Stronger 2024

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Thank you for joining us!

Thank you for being part of the 2024 Living Rare, Living Stronger® NORD® Patient and Family Forum, both in Los Angeles, CA and online. This was our inaugural West Coast edition of this cherished community event, and we savored every moment.

The forum featured memorable highlights, including performances by the all-women wheelchair dance troupe, the Rollettes, and a keynote address by filmmaker and epilepsy advocate Miles Levin. These experiences, along with many others, ensured the event left a lasting impression on all who attended.

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Newborn Screening in America thumbnail
Newborn Screening in America
Opening Keynote: Miles Levin & His Award-Winning Short Film, “Under The Lights” thumbnail
Opening Keynote: Miles Levin & His Award-Winning Short Film, “Under The Lights”
Finding Purpose Despite the Pain thumbnail
Finding Purpose Despite the Pain
The Benefits and Limitations of Genetic Testing thumbnail
The Benefits and Limitations of Genetic Testing
Overcoming Insurance Barriers with Rare Disease thumbnail
Overcoming Insurance Barriers with Rare Disease
Sexual and Reproductive Health Issues in Rare Disease thumbnail
Sexual and Reproductive Health Issues in Rare Disease
Rare Breakthroughs in Research and Care thumbnail
Rare Breakthroughs in Research and Care
Finding Purpose Despite the Pain thumbnail
Finding Purpose Despite the Pain

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