Hong Li

Department of Genetics and Pediatrics

Emory University School of Medicine

Rossana Sanchez

Department of Genetics

Emory University School of Medicine

Stephanie Keller

Pediatric Neurology

Children's Healthcare of Atlanta

Alison Leeds

Connecticut Ambassador

NORD Rare Action Network®

Amanda Singleton

Director, Patient Advocacy and Biopharma

GeneDx

Mason Barrett

Policy Analyst

NORD

Montrez Lucas

Director of Patient Engagement

NephCure

Dawn Laney, MS, CGC, CCRC

Associate Professor/Genetic Counselor, Director of the Emory Genetic Clinical Trial Center

LSDC Program Leader

Alpa Khushalani

Duchenne Mom, PPMD Connect Coordinator

Gooseberry Research - VP Customer Success & Delivery

Jorden Albright

Advocate, Patient, Brother; Director

Rise Property Group

Kimberly Gonzalez

Patient, Advocate

Tamekia Parence and Carl Mumford III

Patient Advocate, Caregiver, Mother

Jill C. Flanagan, MD, FAAOS

Pediatric Orthopedic and Limb Reconstruction Surgeon, Co Medical Director – Limb Difference Program, Children’s Physician Group – Orthopedics and Sports Medicine

Children’s Healthcare of Atlanta

Michael Kraft, MD FAAFP, CAQSM, DipABLM

Associate Chief Health Information Officer, Medical Director Virtual Care, Assistant Professor Family and Preventative Medicine

Emory SOM

Nakisha Isom

Patient, Mother, Advocate, Author activist, President

Living with Holt Oram Syndrome

Kimberly A. Moran, PhD, MBA, CDP

Head, US Rare Diseases

UCB, Inc.

Patrick Collins

Vice President of Community and Corporate Affairs

NORD

Kelly Esperias, EdD, MBA, CFRE

Chief Strategy and Operations Officer

NORD